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ENGAGE
Learn about our community and initiatives
Join us in upcoming campaigns, virtual activations, and community-driven events as we unite to raise awareness and fundraise for rare disease research
Click on the images to learn more about each UBA5 family
WHAT'S HAPPENING
Check back for new updates

DreamHack Dallas 2025
May 23-25
Fight4Rare booth at one of the largest digital and gaming festivals in the world

EVO 2025
August 1-3
Fight4Rare campaign at EVO, the biggest fighting game tournament in the world

Run4Raiden 5K
Fall 2025
Inaugural Fall Run4Raiden 5K to raise funds for UBA5 research. Exact date - TBD
RECENT PAST EVENTS
Click on images to view videos
GET INVOLVED

Coming soon...
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Ambassador Program
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DIY Fundraisers
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Event Volunteers
MEDIA
Featured In
Read about our journey and impact in the media as we share the narrative of hope, possibilities, and awareness



Other notable articles:
Koin 6; Nov. 7, 2023
OHSU News; Sept 13, 2023
KXL Radio; Sept. 14, 2023
The E: Series; July 11, 2023
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