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ENGAGE

Learn about our community and initiatives 
Join us in upcoming campaigns, virtual activations, and community-driven events as we unite to raise awareness and fundraise for rare disease research

Click on the images to learn more about each UBA5 family

WHAT'S HAPPENING
 Check back for new updates

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Space4Rare

Feb 14 - 22

In partnership with Space Blue, Raiden's story is now a part of the Lunaprise Museum, which has landed on the moon. Read more

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2024 Run4Raiden

Feb 24 - Mar 17

Activated our 3rd annual Run4Raiden virtual 5K campaign to raise awareness and funds for UBA5 research. Read more

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El Paso Comic Con

Apr 12-14

Integrated with El Paso Comic Con, thanks to Damascus Gaming and Ace Acosta. Watch our interview with Ace

RECENT PAST EVENTS

3’s 4Rare - Blazers Game

2023 Run4Raiden 5K

NACL Connect X

Hope4Rare - Los Angeles

OHSU Give Day - 2023

2023 EVO x Fight4Rare

GET INVOLVED
Volunteer

Coming soon...

  • Ambassador Program

  • DIY Fundraisers

  • Event Volunteers

MEDIA

Featured In

Read about our journey and impact in the media as we share the narrative of hope, possibilities, and awareness

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