ENGAGE
Learn about our community and initiatives
Join us in upcoming campaigns, virtual activations, and community-driven events as we unite to raise awareness and fundraise for rare disease research
Click on the images to learn more about each UBA5 family
WHAT'S HAPPENING
Check back for new updates
Space4Rare
Feb 14 - 22
In partnership with Space Blue, Raiden's story is now a part of the Lunaprise Museum, which has landed on the moon. Read more
2024 Run4Raiden
Feb 24 - Mar 17
Join our 3rd annual Run4Raiden virtual 5K campaign to raise awareness and funds for UBA5 research. Sign up here
El Paso Comic Con
Apr 12-14
We will be at the El Paso Comic Con, thanks to Damascus Gaming and Ace Acosta. There will be gaming challenges and prizes.
RECENT PAST EVENTS
3’s 4Rare - Blazers Game
2023 Run4Raiden 5K
NACL Connect X
Hope4Rare - Los Angeles
OHSU Give Day - 2023
2023 EVO x Fight4Rare
GET INVOLVED
Coming soon...
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Ambassador Program
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DIY Fundraisers
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Event Volunteers
MEDIA
Featured In
Read about our journey and impact in the media as we share the narrative of hope, possibilities, and awareness
