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OUR MISSION
Harness the power of family, community and science to accelerate development of effective UBA5 therapies

OUR VISION 
Create a future where there are paths forward for treating rare diseases and empowering families to make a difference

OUR FOUNDING TEAM

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Tommy Pham

Co-Founder & President

Gaming Partnerships Manger

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Linda Pham

Co-Founder & Secretary

Merchandiser

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Chris Andon

Chief of Staff & Treasurer

Director, Digital Patents and Metaverse IP

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Ruth Napier, PhD

Chief Scientific Officer

Molecular Microbiology and Immunology Assistant Professor, Oregon Health & Science University 

Jessica Wallans

Communication Expert

Transition Manager

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Time is running out.
But, it's not too late. 
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BOARD OF DIRECTORS

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Amber Allen

Founder, CEO

Double A Labs

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Kori Vyse

VP of HR (Retired)

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John Bial

CEO

Capsigen

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Alex Young

Head of Strategy

Epic Games

SCIENTIFIC ADVISORY COMMITTEE

Allison Bradbury, MS, PhD

Principal Investigator

Nationwide Children's Hospital

Charles Keller, MD

Founder, Scientific Director 

Children's Cancer Therapy Development Institute

Aaron Ciechanover, MD, DSc

Nobel Laureate - Chemistry

Technion

Milky Kohno, PhD

Assistant Professor

Oregon Health & Science University

BUSINESS ADVISORY COMMITTEE

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Imran Babar, PhD

Chief Business Officer

Cyden

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Molly Lindquist

Executive Producer
Castle Animations

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Jerry Carleton, JD

Principal Attorney

Immix Law

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Philip Reilly, MD, JD

Venture Partner 
Third Rock Ventures

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Michele Daterman

Senior Director

Jordan Brand, Kids

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Andrew Watson, PhD

Partnership Director
Mayo Clinic

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Bebe Winans

6-Time Grammy Winner &

Executive Music Producer

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With your help, we can
turn hope into reality.
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