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OUR MISSION
Harness the power of community to innovate treatments for rare diseases, starting with UBA5
OUR VISION
Make the impossible possible for RARE
OUR FOUNDING TEAM

Tommy Pham
Co-Founder & President
Gaming Partnerships Manger
Nike

Linda Pham
Co-Founder & Secretary
Merchandiser
Nike

Chris Andon
Chief of Staff & Treasurer
Director, Digital Patents and Metaverse IP
Nike


Ruth Napier, PhD
Chief Scientific Officer
Molecular Microbiology and Immunology Assistant Professor, Oregon Health & Science University
Jessica Wallans
Communication Expert
Transition Manager
Nike
SCIENTIFIC ADVISORY COMMITTEE

Allison Bradbury, MS, PhD
Principal Investigator
Nationwide Children's Hospital

Charles Keller, MD
Founder, Scientific Director
Children's Cancer Therapy Development Institute

Aaron Ciechanover, MD, DSc
Nobel Laureate - Chemistry
Technion

Milky Kohno, PhD
Assistant Professor
Oregon Health & Science University
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