MEDIA

Thank you to all who are sharing our story. 

Raiden's story has gained national attention as he works to become one of the first people to receive a gene therapy program for UBA5 just for him. We continue to work towards our goal of $1M so we can kick off the program with the University of Massachusetts .

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Social Media Influencers

Thank you to social media influencers. You are helping us grass roots get the word out.

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