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OUR UBA5 COMMUNITY

Every UBA5 Warrior is Unique

RARE IS NOT SO RARE

200M

Children are affected by rare disease worldwide 

60M

30% of the children affected by a rare disease will not live past 5 years old

95%

of rare diseases have no approved treatments

80%

of rare diseases are caused by genetics defects

We are fighting to make the impossible possible for rare diseases, starting with UBA5 disorder.

WE CANNOT CHANGE TOMORROW WITHOUT YOUR SUPPORT TODAY.

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