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The Pham Family
Oregon, USA
The Smith Family
Kansas,USA
The Kabella Family
Indiana, USA
The Pham Family
Oregon, USA
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THE UBA5 COMMUNITY
We are a small group of families connected by the common denominator searching for a treatment for UBA5.
We bring each other support through empathy and understanding in fighting this challenging rare disease.
More to come soon...
PRINT AND POST!
Help us get the word out by printing and posting this 4x6 sign!
Restaurants, grocery stories, businesses, community centers, hospitals are examples of places this sign could go. We need your help!
Just click the flyer to save and print.
BioBank
Coming soon...
Patient Registry
Coming soon...
Resources for Newly Diagnosed
Coming soon...
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