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The Pham Family
Oregon, USA

The Smith Family
Kansas,USA

The Kabella Family
Indiana, USA

The Pham Family
Oregon, USA
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THE UBA5 COMMUNITY
We are a small group of families connected by the common denominator searching for a treatment for UBA5.
We bring each other support through empathy and understanding in fighting this challenging rare disease.
More to come soon...

BioBank
Coming soon...

Patient Registry
Coming soon...

Resources for Newly Diagnosed
Coming soon...
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