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The Pham Family
The Pham Family

Oregon, USA

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The Smith Family
The Smith Family

Kansas,USA

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The Kabella Family
The Kabella Family

Indiana, USA

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The Pham Family
The Pham Family

Oregon, USA

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THE UBA5 COMMUNITY

We are a small group of families connected by the common denominator searching for a treatment for UBA5.

We bring each other support through empathy and understanding in fighting this challenging rare disease.

 

More to come soon...

  • Facebook
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PRINT AND POST!

Help us get the word out by printing and posting this 4x6 sign! 
 

Restaurants, grocery stories, businesses, community centers, hospitals are examples of places this sign could go. We need your help!

Just click the flyer to save and print.

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BioBank

Coming soon...

 

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Patient Registry

Coming soon...

 

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Resources for Newly Diagnosed

Coming soon...

 

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Together, let's make a difference. 
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