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OUR UBA5 COMMUNITY
Every UBA5 Warrior is Unique
RARE IS NOT SO RARE
200M
Children are affected by rare disease worldwide
60M
30% of the children affected by a rare disease will not live past 5 years old
95%
of rare diseases have no approved treatments
80%
of rare diseases are caused by genetics defects
We are fighting to make the impossible possible for rare diseases, starting with UBA5 disorder.
WE CANNOT CHANGE TOMORROW WITHOUT YOUR SUPPORT TODAY.
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